|
Member
|
|
Join Date: Sep 2013
Location: Georgia
Posts: 905
|
|
|
Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
|
PM Dr wants me to do Clinical Trial-Nevro HF10 SCS
Here I go again !
Past experience with SCS: Had a trial with the Medtronic this past December. Didn't work out well as it did not cover my pain nor allow me to do anything more than I was already able to do.
I did not have to pay for this trial as a Charity covered it for me. Which is really why I talked myself into doing the trial.
Right after that I titrated down on the BuTrans patch and was then put on ER Morphine 15 mg.....that was a nightmare as the 15 mg was too low for me and I was miserable for the 6 weeks it took to talk my pain mgmt. dr into increasing to ER 30 mg. I'm finally at a level I can deal with. Not ideal but can live with.
I had a PM appointment this past Monday and he asked me about joining their Clinical trial for the Nevro HF10 SCS therapy. It's the one that doesn't have the pulsing options. There is no feeling at all except it is suppose to interrupt the pain signals to the brain.
And this one is free also.
I've discussed with my grown children and SIL and they all support me in getting the trial put in.
So....I guess when they call I'll sign up for it.
I'm on here for support as I go through this. I have severe small fiber neuropathy and am on disability. I'm usually on the PN forum so some of you probably already know most of my story.
It's my understanding that this SCS is already on the market.....is the one they are going to put in something new ? Didn't ask the dr why this was a trial when they are already on the market.
He's hoping it will better cover my SFN that goes all the way to the tips of my toes.
Thanks to all who take time to read this. I'm here for support while going through this and for any comments you may have on this SCS.
Debi from Georgia
|