I was diagnosed with DRG....not that it mattered (treatment-wise)! Cliffman and Heathgirl....I also had a completely unresponsive "top doc" at Columbia, but it seems I found a really dedicated and kind neuro at Weill Cornell...thanks to Glenntag! Please PM him or me if you'd like the name.

Healthgirl...I just wish for you to know I'm hoping for the best for you and your children. I hope Kiwi's insights were reassuring.

Sylvie