David, post the procedures have they got you lying completely flat for up to 4 hours or more? When coming home from the office are you sitting up in a car or lying flat?
Blood patches don't always take, quite often they need to find the exact point of leak but that can be extremely hard. My mum was in hospital for 4 months, had numerous blood patches, scans of all different sorts and they never found the exact spot. She even had tissue gauze stuffed up her nostrils for 24 hours, they were able to determine through testing the gauze there definitely was a leak but that was it, nothing more and the blood patches, unlike mine, never took. Post mums procedures they allowed her to get up and go to the toilet and move around in the bed, they were not strict with her at all. Post my procedures, each time, I was on strict lay flat for 4 hours, they even gave me a catheter for the first one so I would not need to get up.
There is hope however, 15 months on, she lives a good active life and her headaches and vertigo don't seem to bother her as much as they did, and has not needed to go to hospital again. Stay strong, I hope you can get some answers soon
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Originally Posted by david01
Update....
I had the blood patch done at his office #3. I couldn't wait any longer because the headaches and light sensitivity were so bad. I haven't been able to give an update because the patch didn't take. In fact I think it got worse. The light sensitivity is so bad I can't look at my computer screen or phone. My wife and I spent the last two weeks trying to get in to see a specialist.
My appointment was this past Friday. We thought I was going to have some kind of leak test / study done. Well, the only order the doctor had was for a blood patch #4. Several phone calls were made Friday morning to rectify this. Unfortunately the leak test wasn't going to happen. I was in so much pain, I wasn't about to leave without anything being done. So I went ahead with blood patch #4. If and or when this one fails we have a plan in place. The specialist was great. I believe I'm in good hands now.
I'm posting this now because when the light sensitivity comes back I won't be able too. I hate to say it, but I don't think this latest blood patch is working. I was feeling good yesterday but today some symptoms are returning. I'll know for sure if it worked or not by Tuesday. Fingers crossed!
David
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