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Old 04-27-2016, 07:26 PM
Summerfun Summerfun is offline
Junior Member
 
Join Date: Dec 2014
Location: New Hampshire
Posts: 64
8 yr Member
Summerfun Summerfun is offline
Junior Member
 
Join Date: Dec 2014
Location: New Hampshire
Posts: 64
8 yr Member
Default B6 and lack of education

Happened to me too but I had already been diagnosed with idiopathic NLD SFN. Ten months after I was diagnosed I sought out a LLMD because I learned Lyme could cause it. My 2nd Elisa came back negative but my Western Blot IgM was positive. My LLMD started me on B6 + B Complex as well as antibiotics. Who puts a person on B6 who already has neuropathy without testing their level first? I was on 250mg daily for one year when I learned it could cause SFN and asked to have my level tested. She thought it was really unnecessary as it is a water soluble vitamin and "doesn't build up in your system". Wrong....my level came back as 53 with normal at 21 for the max. So if the Lyme did cause my SFN any chance of regeneration after antibiotics was eradicated by the toxic B6. More education is needed!. I see my neurologist next Tuesday and he is going to be mad!
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