Thread: New diagnosis
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Old 05-10-2016, 02:31 PM
MikeK MikeK is offline
Junior Member
 
Join Date: Mar 2014
Posts: 72
10 yr Member
MikeK MikeK is offline
Junior Member
 
Join Date: Mar 2014
Posts: 72
10 yr Member
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I have neuropathy in my feet caused by a critical illness. I also had issues in L3-4-5 that contributed greatly to the pain in my feet. The pain I described versus what the MRI showed was completely opposite. It took a myelogram for the surgeon to see what was really going on with my back. I had lumbar surgery, screws, rods, spacers, the 3 disks are now fused. My back pain is pretty much gone, I still have neuropathy, its not going away but at least I don't have all the other pain adding to it.

My surgeon told me a couple of interesting things
1. Different views of different peoples backs show many things, some look like they should be doubled up in pain but feel nothing, others look like they should be fine and are in agonizing pain. It all depends what signals the nerves are sending.
2. Many of the people he operates on by 12 months most of the pain in their feet is gone, once the nerves completely settle down. Since my neuropathy is from a critical illness he didn't think I would experience the same, at 11 months he is correct. I take Gralise (time release gabepetin), I still have those days that it flares up but knock on wood its way better than it was a year ago so I got that going for me.

Good luck I hope you find something that provides you relief
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My PN is considered Critical Illness Neuropathy. In October 2010 I left for a golf trip not feeling well, woke up in a hospital 21 days later. I was in an induced coma for treatment of Legioneers Disease. First day out of ICU I noticed the pain in my feet and as they say the rest is history.
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