Junior Member
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Join Date: Aug 2015
Location: New Zealand
Posts: 78
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Junior Member
Join Date: Aug 2015
Location: New Zealand
Posts: 78
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confused diagnosis
hi I have been ill for 3 years now with severe ongoing pain both muscular and neuropathic, significant fatigue and multiple neurological symptoms such as difficulty walking, speech impediment etc. the doctor that I first saw suggested that I probably had fibromyalgia and that certainly seemed the case for the first 6 to 8 months. I had all of the symptoms of fibromyalgia. However things began to change as I developed more symptoms that I don't think fit for the diagnosis including as I said before speech impediment, and other things such as photosensitivity, difficulties using my hands, etc.
I've ended up with two diagnoses both of which have created more problems than help. I don't really fit anywhere. My diagnoses are functional neurological disorder and Central sensitisation. Pain is by far the biggest issue but I have multiple other symptoms that affect my life a great deal.
I saw a pain specialist who examined me and she checked the 18 points that are sometimes used when a doctor is trying to diagnose fibromyalgia. 14 out of the 18 were extremely painful. I don't know if this is a good way to reach a diagnosis but it does make me wonder if I have fibromyalgia as 1 of the things I am dealing with. I guess my question is what has been the experience of other people with fibromyalgia? have some people then gone on to develop Central sensitisation or something similar? I have read some things on the Net about this.
I did see a rheumatologist but it was a complete waste of time and money. He didn't exam me and decided my symptoms were the result of using antidepressants. Any thoughts or advice would be appreciated. Thank you.
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