Junior Member
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Join Date: Jul 2012
Posts: 66
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Junior Member
Join Date: Jul 2012
Posts: 66
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I do have dry eyes and dry mouth (less frequent than the eyes). I also have some bladder dysfunction. It's odd, but when my feet and lower legs are really burning I tend to have the urinary problems such as urgency and difficulty emptying. However, when my upper legs are doing more of the burning I tend to have more problems with dry eyes. I am at a loss as to why.
I had a salivary gland biopsy a couple of years ago or so and the results were considered insignificant by docs. Here are some notes from it:
"Minor Salivary Gland Tissue with slight Lymphocytic infiltrate. Focus score 0."
"There are a few small clusters of lymphocytes, all of which are less than 50 cells."
I do have psoriasis, that has been confirmed through biopsy. Have not had much in the way of problems with joint paint...just the brutal nerve pain from the sfn as well as the autonomic involvement.
The only other thing that I can really think of is that there are something about the capillary beds under some of my fingernails that the rheumy says is sometimes seen with patients with autoimmune disorders, but it is apparently very non-specific in what it means.
That's where I stand. I could either try the 40 mg 2 wk, 20 mg 6 wk prednisone trial (although my inflammatory markers have always been low) or push harder for the IVIG pursuit at next appointments with neuro/rheumy I guess.
It's tiresome, because I feel like the doctors could figure out more than they do sometimes. But easy for me to say I guess.
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