Maygin, I dont remember the doctor who I saw that had said she had seen it internal many times before but will try and look through the doctors on the website and see if I can find her, she didnt treat rsd, I was seeing her for my bladder as to why it shut down she is a urologist, but she said she see's and tries to help many people who have RSD and said that their complications were or are due to the RSD giving issues with the nerves causing the bladder to have issues and she said many of the people with rsd have many other organ issues which the other specialists attributed to rsd. The swallowing shut down was awful the muscles in my throat couldnt move at all as my nerves werent sending the message to do it. Like about more than a year ago I have been having issues again but now solid foods at times get stuck half way down and cant seem to swallow them down. The bladder issue is really bothersome, I usually only have issues if Iam having a flare and what happens to me is like my bladder goes numb and not only dont I have a feeling of when I have to go, I just cant and eventually what happens is my lower stomach just becomes so painful because its full and the nurses ultrasound my bladder to see how full and its so full they cant believe it and they have to put in a fully catheter until I can use my bladder again. I mean like 1 time a doctor didnt believe RSD could shut it down so gave me several bags of fluids along with meds that make you have to go and made me wait several hours but nothing worked other then causing me lots of stomach pain.
Iam afraid I dont know how to differentiate between IBS and RSD in the stomach sorry. With the burning pain in my stomach and how it gets so much worse during flares with even my skin on top of my stomach getting warm and cant be touched thats some of the symptoms my doctors went by to diagnose having rsd in my stomach. I mean I have other issues to with my stomach so I know what your mean of not really Knowing how to know which issue could be 1 or the other. Its like I have another disease sarcoidosis and with it in the liver, then have gallbladder issues and then the stomach issues its always wondering which, which is which.
I know how all of this is always making like my head spin, things nerver seem simple and rsd going internal just adds to the box, and learning to know what is what or if its rsd or not is hard. Also finding drs who know about RSD and know how to know how to tell if its internal or not is very hard. I went through 113 drs in 13 states looking for help and treatments and there were some helpful things and tips and treatments found along the way but finally found my dr now but this RSD monster sure doesnt make it easy for anyone to find help, or treatments.

Samantha