Annie,

Thank you so much for all of the valuable information. There is so much to learn about MG. My mother was in the hospital in mid-April, she went in with a droopy eye and three days later she was released and told she had MG. Though they didn't have the final conclusive test at the time of her release, but I assume when she went back to the local neurologist a week later, it was MG because he kept her on Mestinon (I didn't go with her, my sister did).

I did order a Medical alert system for her, it should be in tomorrow. She did have breast cancer once but totally free of it now, but she takes a daily anti-cancer drug (not sure of the name). I live four hours away from her, but will drive up next Friday to accompany her on her next appointment with the local Neurologist. I'm not sure how much of an expert he is in MG, so I'm anxious to see what he would recommend next since the Mestinon hasn't helped with her vision or weak neck muscles. Though we do have an appointment in two weeks with a specialist in Philly to get a second opinion.

So I guess my big questions are do we try the Prednisone if that's what the doctor recommends next week? What happens when someone with MG catches a cold, is it very serious? Can MG crisis hit at any time and even when someone is on Mestinon and/or Pred? I'm trying to monitor things from 250 miles away without making her too nervous about what I find out.

I am so grateful for your response. I hope things are well for you.

Sincerely,

Rob