Quote:
Originally Posted by RobTom
Annie,
Thanks again for all the invaluable information you provided. I really appreciate it. My mother had her second appointment with the local neuro yesterday. I had my sister ask the question you mentioned above, specifically, was the blood test conclusive for MG. The doctor said that the blood tests from the hospital stay wasn't 100% conclusive for MG. Not sure what else needs to be done for it to be 100% conclusive, but maybe the specialist will have more info when she goes next week.
In the meantime, the doctor upped her Mestinon back to the four pills a day level to see if it can make some difference with her sight and weak neck muscles. She just keeps saying she wishes she could get her sight back most of all. Bright light also seems to bother her. But the local neuro didn't recommend any other drugs at this time. He did some tests on her arms picking her with needles she said.
Again thanks a ton for your knowledge! We're just looking to get to that point when there is some stability again for her.
Rob
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Hi Rob hope all is well
In previous post you said that your mom had some intestinal issues with the 4 pills. Your mom could take 3 1/2 or 3 3/4 depending on her symptoms. My Neuro put me on 180mgs 2 times a day (that's 3 - 60mgs tablets) but that gave me SEVERE stomach cramps and SEVERE deihrea with cold sweats and dizzyness. So now I take between 135mgs to 150mgs 2 times a day depending how I feel (that's 2 1/4 to 2 1/2)