Thank you to those who offered some suggestions. SilvieM, thank you. I was hoping for some more specific recommendations and experiences with details, if anyone out there has visited any of these places. But yes, I think I'll PM Glenntaj and En Bloc, both of whom I know have specifics and knowledge on this issue. Also, I'll be contacting Dr. Oaklander to see if she'll see me and can do so in such a way as to run a bunch of tests and have a rheumy see me too while I'm there, so whether she can offer a multidisciplinary approach too. But if she herself can see me and run a bunch of tests including some that I can't get here, then it might be worth (what I imagine would be) an expensive trip to Boston.