i'm sorry you're going thru this. be especially watchful this summer as a lot of us are heat intolerant. if i get too hot (like going to the mailbox) my legs may not want to move.

has your neuro discussed using any DMD's?
are you RRMS?

in my early time after being diagnosed i learned the hard way to start using some physical aids; like getting a handicapped sticker, using a cane, the cart in the grocery store etc. it all can help conserve energy needed for everyday activities. altho it's sometimes difficult to admit it.

i hope you get some help from your docs. write down Q's and bring with to appts. keep us posted.