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Member
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Join Date: Jan 2008
Location: windsor ontario canada
Posts: 305
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Member
Join Date: Jan 2008
Location: windsor ontario canada
Posts: 305
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I'm back!
Here we go again !
Spasms are unrelenting.
Just an update , I haven't been here in a awhile .
Last year I found a new neuro , I had spasms so bad I had to go to ER.
My pcp said "you have MS.. don't let them push you around... Fight for yourself , get a spinal tap if you want one" neuro examined me.. Said it was Dystonia.
No new test were ordered, said to see him in six months..same old same old.
Went back 9 months later, he kept re scheduling appt. the. He lost my Medicare
reports. Saw him finally, he made me walk backwards , said I looked fine and to see him in six months.. I never went back.
Found a new pcp... Moved back to where we lived before ... Doctor said I have Dystonia with weakness in my arms and legs reflexes in my left leg was insane.
Said in his opinion it was MS... Gave me back often and lyrica, I follow up in 2 weeks, he will book an MRI and find me a neuro.
Baclofen not working, just makes me worse .
I'm okay with all this , I've made peace with it, I just want answers
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