OH MY GOD.
I can't believe all you went through on top of the actual hell of this disease!
If you are at Stanford then you are in good hands, they are leading the way in researching the causes and treating this condition. I'd ask them about Low Dose Naltrexone once you are off the opiates, since you won't want to be on the opiates anyway. I know they have been working with them for a while, and have a pharmacy that compounds it. Some patients have high success with it.

You are not alone!!!