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Old 06-06-2016, 09:35 PM
en bloc's Avatar
en bloc en bloc is offline
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Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
en bloc en bloc is offline
Senior Member
en bloc's Avatar
 
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
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I also spent a week there.

You have NO choice...they WILL repeat ALL your testing. The doctors are arrogant and unless you have very clear positive results to specific tests that fit their criteria, you will be brushed off as many here (myself included) have reported. They made my dysautonomia Dx, but completely missed my Sjogren's, APS, etc...because they refused to do a lip biopsy and other testing (since my SjS labs were negative). They said my autoimmune symptoms were all in my head (exact words)...then I had my first of three strokes after their missed Dx.

They have EXCELLENT logistics and organization, along with access to great testing. But the doctors are not great.
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