Quote:
Originally Posted by AnnieB3
I know that many people love the NHS, but I keep hearing such bad stories! 
Any infection can make MG worse. I wonder if your daughter might have some kind of immunodeficiency: IgA, IgG, IgE, IgM, and IgD. I know that kids get sick more often, but it sounds as though your daughter does more often.
I hope you will get her to the hospital right away if she can't move well, breathe well, or swallow, or is generally overall weak.
I hope both of you will be tested for B12 and D deficiencies. They're very common for people with autoimmune diseases. Watch out for any thyroid symptoms as well.
I hope your daughter takes naps after school. That would really help her.
Going to a pulmonologist is useful, too. They can do a baseline reading for breathing (MIP and MEP are specific to neuromuscular diseases).
Does she use two puffs twice a day while having a lung infection? I need to do that, which is written on my Flovent inhaler prescription. You might want to ask the prescribing doctor about that.
Washing hands a lot helps while in school too, to stop those germs from spreading! Or bringing a product such as Purell hand sanitizer to school.
I hope she will get some help soon!!!
Annie |
Unfortunately she gets far to much homework to do naps after school which would be good. Yes she doubles up on her inhaler when she is chesty and takes salbutamol when she moves around school. She takes a hand sanitizer to school and has done for many years. I will be asking the dr about doing further testing depending on his view on the neurologist and will be asking if she can be referred to see a different one if there is a different one. The NHS is under staffed and very poorly run hospitals are not as clean as they should be, hand sanitizer I is needed there too! there aren't enough Drs or nurses and usually the wait to see a specialist is around 6 months!! And then you get one that hasn't a clue about myasthenia gravis which is typical. My neurologist said that any positive blood test means she has it so I will talk to her too but I won't see her for about 3 months now. Thank you for your advice
