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Originally Posted by ellsac
Hi there! I haven't been on in a while also.
I really hope something comes up!! Good luck!
As for myself, I'm still plugging along. The neuropathy has switched from painful to mostly losing sensation to touch all over my body-head to toe. It feels so odd to be touched-I can feel it, but it is weird and muted.
Finding the cause for me is basically at a stand still and I've accepted that, because it is most assuredly due to autoimmune activity of some kind-so I try to just be healthy and live. I do ok with it-and I can enjoy life this way. I hope I stay this stable.
Oddly, I had a second nerve issue recently. A disk in my neck herniated severely (not sure why-genetics in my family predispose us to bad backs and loose joints), and it was half into my spinal cord and also crushing my C7 root. I lost strength in my tricep. I was operated on at Hospital for Special Surgery a month ago, and the symptoms are much better. I hope to make a full recovery from that-but we'll see.
Hope everyone else is doing well. 
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Did you ever look into Ehlers Danlos syndrome? I understand that it involves joint instability, can run in families and go undiagnosed. It can cause nervous system problems. I will be asking the geneticist about this. I also have hernations at c5-6-7 and it's no joke. Mine aren't worth operating on though. I'm glad you got some relief from the surgery. Always still hopeful for healing.