Originally Posted by Healthgirl

I have what I am desperately hoping is some good news! I took my little one to a rheumatologist. He looked at my blood work, diagnosis, her blood work, asked many questions, and was interested in the symptoms of the rest of the family. He said it must be genetic- sounds like environmental exposure. This is what I suspect and have had no curiosity or help from any doctors about my kids and how absurd this is. Anyway, because of this doctor, a scientist from Columbia is working on our case and putting together a team of specialists to analyze this situation. It will take a while, but they will have access to all of our files and then determine what genetic testing we need. I am thrilled to be finally getting someone to see this as one thing! It will take time for them to get all records transferred and get us in, but this is what I have been desperately trying for.

Now thats my news. How are all of you doing? Updates?