Hi and Welcome to NeuroTalk,

I am very sorry for your pain and overall discomfort.
I do understand your concerns.

I have seen your post in the PN forum, too.
I also participate on the CRPS/RSD forum.
I am just coming re-visiting after a lengthy time away.
(Just catching up.)

You will also find a great deal of information using the search function here. I am constantly amazed with the amount of information on this site.

I hope you and your doctor(s) can find answers and a viable treatment, ASAP.

My heart goes out to you.

Love All Around,