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Member
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Join Date: Mar 2013
Posts: 173
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Member
Join Date: Mar 2013
Posts: 173
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I can't really answer why exactly this is happening to us (I don't think there's yet a person in the whole world that knows specifics of why this happens), but I tend to think of my concussed brain as a car battery that has been drained completely a couple of times and now cannot hold a charge and depletes easily even if there's only a slight current draw.
Sleep issues prevent us from recharging the battery enough at night, messed up vestibular and/or vision issues put a significant load on the battery and quickly deplete it. At some point there is nothing left no matter how you try to push through it.
When my PCS was at its worst, I could only handle 5-10 minutes of a conversation, after that I had to go to a separate dark room and lay down with my head literally buzzing. A fridge was too loud for me, and anything but a dim light really bothered me.
I'm much better now, but it took over 3 years and quitting my job to really be able to see what it is that is causing most of my symptoms (visual issues).
Time and limitation of stressors is the only way through this.
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12/02/2012 - Light concussion at boxing practice. Ended up having PCS for about 3 months.
March 2013 - Thought that since most of my symptoms resolved I could start having fun again.
Went snowmobiling once (didn't hit my head) and concussion symptoms returned and got even worse than before.
June 2013 - accidentally bumped my head against a deck railing, and had a month-long setback.
November 2013 - drove to work after a big snowstorm and the roads were very rough, ended up having another setback.
2014 - Having setbacks after coughing/sneezing too much, or someone slapping me on the back, or any other significant jarring.
Feb 2014 - Started seeing Atlas Orthogonal chiro - most helpful doc so far.
June 2014 - Two months of physical/visual therapy - no noticeable improvement.
September 2014 - Diagnosed with Perilymph Fistula in right ear.
November 2014 - Fistula surgery (switched to left ear before the surgery after additional testing).
January 2016 - Quit work to "work" on figuring out PCS, so far it seems that eyes/vision issues are the most contributing factor, especially computer work.
Current symptoms are: inconsistent sleep patterns, headaches, vertigo/dizziness, anxiety/panic attacks, mental fog/problems with concentration, problems with computer screens.
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