We have seen her paediatric consultant today he was disappointed with the neurologist he agrees that she needs sorting out and cannot continue like this. He is going to see if my neurologist will see her and if not then refer her to a different one, will be much further to travel but that doesn't matter as long as she is sorted. We are in the uk so she is supposed to see a paediatric neurologist until she is 18 for some reason, she is adult size so don't see the problem. Obviously the NHS is under staffed and poorly managed waiting lists are usually 6 months for consultants and 6 + weeks for blood tests, scans etc!!! She is on steroid inhalers for asthma, she has just had yet another 2 week course of antibiotics and 5 day course of predisolone 8x5mg once a day which worked well till she stopped them hence another week of antibiotics. Thank you for your reply.