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Old 06-17-2016, 02:31 AM
kazzak21 kazzak21 is offline
Junior Member
 
Join Date: Nov 2015
Posts: 36
8 yr Member
kazzak21 kazzak21 is offline
Junior Member
 
Join Date: Nov 2015
Posts: 36
8 yr Member
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Quote:
Originally Posted by Rcd71 View Post
Did you ever find relief ? I had MRI of spine , nerves tested , blood tests - every test know to man - still sun burn head to toe and feels like I used sand paper for a wash cloth - on gabepentin 800mf 3 x a day and 50 mg of topomax still miserable with no answers - really depressed about what the future holds
I have a Corp job that is high stress but I always have - 3 yrs ago I had 2 discs replaced on my neck - the fusion is fine MRI of spine top to bottom is good - I'm scared

Hi there. Sorry to hear about your symptoms. Everything seems to have subsided significantly. Still get a bit of burning in my toes and in my hands odd random fingernail symptoms but did have an MRI of my problematic right ankle. Revealed that one of the bones in my talus was rubbing on one of my tendons and causing pain, which could account for the burning pain. Off to see an orthopaedic specialist in two weeks. May need to just be shaved in a simple operation.

I decided to take a musculoskeletal point of view, my neurologist discharged me and said that the symptoms should disappear slowly due to a virus. I don't know if it is good luck or just time or some of the treatment. Went and saw a rheumatologist with a special interest in musculoskeletal soft tissue injuries (I know interesting combination) and had some manipulations specifically on my neck and lumbar spine and had injections two in my neck and lumbar spine with diluted cortisone and called prolotherapy. I have used him before for my neck problems. Well would have to say things are 85% or so better.

I am very lucky working in the musculoskeletal field as a physio and have some inside knowledge of the best in the business. In a city the size of Auckland we have a few outstanding musculoskeletal specialists and I have been under the care of 2-3 of them over the last few months and I am so grateful. I still have the odd flareup and am off medication.

Have you tried to find a person that is not from one specialty but able to go across 2-3 a pain/musculoskeletal and rheumotologist/musculoskeletal specialist were the two I found most helpful. All through this I had no outward symptoms and thought I may have been going mad but I found two specialists that actually believed in me and my symptoms and were prepared to go the extra mile. I wish you luck and I will continue to keep you updated!
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"Thanks for this!" says:
bluesfan (06-17-2016)