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Old 06-21-2016, 06:34 PM
Sven Sven is offline
Junior Member
 
Join Date: Oct 2015
Posts: 42
8 yr Member
Sven Sven is offline
Junior Member
 
Join Date: Oct 2015
Posts: 42
8 yr Member
Default Thanks for the reply

Hi Still Hoping...
All tests were negative on AI issues along with diabetes and all the other tests...so I am idiopathic. I did try steroids for 2 months and did feel better so that may indicate that I may find some help from IVIG...and yes to the fact that I have only SFN...with no autonomic issues right now. So, mostly my issues are skin pain...burning on the feet and hands...and sunburn feelings on back, arms and thighs....no other health problems. I have reduced stress through unloading on work demands and using yoga and meditation. And I have been on a vitamin regimen learned thru posts on this site thanks to all the members here. I have ruled out ABs. nutritional issues, or vaccines...all the docs look at me and can't figure a cause...one doc diagnosed sensory only GBS...but thought I should be getting better by now...so here I am wondering if there is something other than pain management which is frowned upon by the FAA. I will ask the neuro about Rituximab...although I can't pronounce it...and look it up on google to see if is an option.

One thing I have been wondering...maybe many of us idiopathics have an AI issue but one that there is not really a test for...or we have an AI issue that has not really been discovered...it is crazy...since I really feel inflamation is causing my pain and that points to some type of AI dysfunction.

Anyway thank you for your comments

Sven
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"Thanks for this!" says:
DejaVu (06-26-2016), echoes long ago (06-21-2016), ElaineD (06-22-2016), St George 2013 (06-22-2016)