Thank you, Northerngal and DejaVu for sharing your experiences and thoughts. DejaVu, I'm so sorry to hear about your terrible experience. Terrible! I have never heard anything positive. I saw and spoke with the specialist this week and he brought it up again, but I shared my concerns and my neurologist's, and he agreed. He also thought it wouldn't be particularly revealing, since I have no motor involvement. See, with Amyloidosis, the method employed is to biopsy the involved organ(s) and if the nerves are involved, then you biopsy those. I've already had that done during my SFN biopsy and it was negative, but it rarely shows up that way. Anyway, we might do a fat pad biopsy and something else, but there will be no sural nerve biopsy unless it's utterly necessary, and I can't see that happening.

Thanks again and all the best!