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Originally Posted by TulipsMyst
Hello my name is Sheila an I am 44 an I joined this site to meet new people, I am not sure if this also deals with mental health issues as well, I live with bipolar borderline personality disorder, anxiety disorder and also depression.fibromyalgia with pain everyday Irrtable bowel syndrome, mirgaines , fibro fog, along with neuropathy I have numbness in my feet hands, arms and I am starting now to feel it in my legs not going to lie all of everything I have can an is scary. I feel like I am not normal compared to the people in my life that do not have any of these things I deal and live with. That is why I joined this site to talk with anyone else that might deal with daily.
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Hi Tulips,
Welcome to the Neurotalk forums.
I have been around here many years and have found people are wonderful about sharing their knowledge and experiences. Also, the moderaters do a terrific job keeping everything civil and running smoothly.
Like you, at almost the same age (late 30's) I started having many of the same physical issues you mentioned. My docs just couldn't seem to connect the dots of neuropathy, sudden onset migraines, memory problems and problems thinking clearly, anxiety, severe pain in neck/head, joint pain, seizures, sleep issues. I was miserable and limping along in my job thinking, how in the world can I continue to live and work like this.
After almost 3 years of going to docs and getting a myriad of tests and diagnosis, it was found I had Lyme Disease. They began treating me with massive amounts of antibiotics, had me stop working and by that time, I was home with nursing care, doing IV antibiotics. I got better rapidly. It was wonderful to have my memory back, my brain clear and my pain gone.
I still have problems because it took so long to diagnose but, I am better
than when first dx'ed.
I find, sadly, Lyme Disease has become an illness that is overlooked and ignored in today's world. It has a very long list of symptoms and can devastate people's lives. People often get put in the Fibro or MS category which is sad because, if caught early, antibiotics can cure Lyme Disease.
Just mentioning it as something to explore.,
If you want help or details, please let me know.
There is ALOT of misinformation out there and if you do explore testing, don't just go to your regular Primary care doc because the tests to detect are poor. You need to find a doc who specializes in Lyme Disease,often called LLMD's which stand for Lyme Literate MD's. I can help with that.
Even if you were tested previously, get tested again via one of these docs.
It is an illness that needs a clinical diagnosis, which means, the doc doesn't JUST look at your test results, they look at the whole picture of your life and symptoms and THE DOCTOR makes the diagnosis and doesn't just rely on test results.
Sorry for what you are enduring.
There are many folks here whose lives have been Sidelined by illness yet, we have learned to work within the confines of our current health status and persevere, often with the help and support of the kind folks here.
My best,
Diandra