Hi Kiwi33,

Thank you for the link. Yes, you're quite right. There can be, but the first step is to have a positive nerve conduction test, and I've had three negative ones. The protocol is to do the biopsy after a positive test. So yes again, there are a number of others tests they can run and have done so for me, all of them negative so far. A few weeks back I had stomach and intestinal biopsies done via endoscopy and colonoscopy respectively that I should hear back about soon, and the latter in particular is a valuable biopsy, especially where there is GI involvement. None of the urine or blood tests have revealed anything.

The TTR test that we spoke about/that I posted about a while back came back negative, as I suspected. If I do have the disease, I've suspected all along, it will be primary or acquired not genetic. The negative TTR is good, though there are many other genes that can be involved, though as I'm sure you know TTR is the most important one, especially with nerve involvement.