Thanks for the welcome deja vu. Pogo, I'm sorry your son is going through this. I think the same about the sleepy bit seeming a seizure symptom. I'm going to see a neurologist soon and this week a specialist at the Tropical Diseases hospital to rule out Lyme. I've been unwell with fatigue and pallor and various non-specific things for 6 months now, so much so that I'm on long-term sick leave. The jerks started about 8 weeks ago. My head feels quite odd. Not sure really how to describe it! If anyone has the same overwhelming sleepiness before their jerk, please let me know.