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Old 07-02-2016, 12:58 AM
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
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Quote:
Originally Posted by ger715 View Post
Hey Mat,
Worry is something that, at times can be helpful; but you know too much can add some very unwanted stress.

You did manage to have some worry removed with your colonoscopy turning out well. As you know; that is a real plus.


Gerry
Gerry, my worry was never about having bowel cancer because I do trust my instincts and these told me that I only had a couple of haemorrhoids. I just knew that in my case, the colonoscopy would be unlikely to give me the clues about what is wrong. I also felt that I didn't have an IBD.

It is much harder to diagnose MM (I have a friend with it) and lots of my signs and symptoms point to it. But my instincts say that I might well have Sjogrens - hopefully the lip biopsy will yield positive results at last and then I will feel as if I've won the lottery! You can't hold worry down in a born Worrypot like me!

You are right though about knowing too much. But when two rheumatologists both run specific tests then inevitably I wanted to know what these tests were for. The first time I checked out the Bence Jones and sighed huge sigh of relief when it was negative (5pm Xmas Eve). By the time the second one showed negative I had learned that only 50% of those with Multiple Meoloma have positive Bence Jones. Finding out that I have Sjogrens or Lupus or my RA comes back will feel very good - but if not then my knowledge will have me pushing harder than ever for answers and that won't be a bad thing. Mat X
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Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases
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"Thanks for this!" says:
ElaineD (07-13-2016), ger715 (07-02-2016)