Are you on any other meds, such as steroids?

Well, the Anti-Jo is an important piece to all of this. Antibody levels come and go. Whether you have polymyositis, dermatomyositis, lupus or a crossover with scleroderma (which can make lungs feel tight), you should try to see a rheumatologist to make sure what it is that you do have.

Mestinon won't help if you have one of the "itis" diseases. Why tax your body with a drug you don't need? Unless you do have MG. There are those of us with more than one AI disease!

A lot of people have disk degeneration and have absolutely no symptoms such as the ones you're having!

How do you know that antibodies (some unknown ones?) are attacking your autonomic system? Have you had autonomic testing?

Not enough diagnosing has been done for you. OR thinking! If you can, try to arrange for a bunch of testing to be done over a period of a couple of days (since you're out of town). Appointments with an endo, rheumy, and neuro seem to be in order.

I hope your docs can figure all of this out for you and get you the appropriate care! Don't let them "guess" at it! That's dangerous.

Annie