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Old 09-24-2006, 02:38 AM
swift swift is offline
Junior Member
 
Join Date: Aug 2006
Posts: 65
15 yr Member
swift swift is offline
Junior Member
 
Join Date: Aug 2006
Posts: 65
15 yr Member
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Quote:
Originally Posted by CPchick View Post
I have a couple of questions about fatigue related to CP. If I remember you have experience with fatigue? Do you know what can cause fatigue and is it basically permanent? Or does it come and go? Maybe it was Katherine (JellyRJFan) who posted about fatigue, but I remember someone did.

Anyway, I need some advice on the whole fatigue and CP issue. Lately, walking has become more difficult and more tiring over the last few weeks. I don't know what's causing this exactly, I have been under a fair amount of stress (mum was diagnosed with MS recently) but I don't know if stress can cause fatigue. Maybe it's just because I am getting older? I've heard that CPs secondary effects like spasicity can increase with age. I would like to hear some of your personal experience.

So any advice by Nicki, or anyone with experience with CP and fatigue would be greatly appreciated.

P.S I just realised the CP forum was back, I should have posted in there. Karmie, you can move it if this is the wrong forum.
Your movement patterns can change as you grow, which can cause fatigue...but if you've been stressed it can be hard to pinpoint exactly when your walking got harder, as mental stress can be (physically) draining anyway. Fatigue isn't permanent (or doesn't have to be) - there are lots of ways of dealing with it (but only going to mention the one I should be using, as that's the one I've experienced).

Has anyone ever talked to you about pacing? (As it's something that a lot of people with CP/neuro issues find they need to do as they get older).

Basically you prioritise the things that are important to you and/or need to get done (including relaxation & having fun/'me' time), plan what you're going to do when and pace (i.e. spread stuff so that you don't over-exert yourself, or under-exert either - as that doesn't help you maintain stamina).

I can't remember if you have an OT/whether they'd be able to help you with that (as I don't know if paeds. OTs do fatigue management as much as adult ones, although it should be done alongside independence skills in my opinion ).

It's also really important to have 'me' time and not feel guilty about it when you're going through a stressful time.

How's the Boccia going?

Take care,
Swift
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