Quote:
Originally Posted by AnnieB3
I would like to caution you about having all of your doctoring filtered through a neurologist. A good internist is essential, as I'm sure you know. Don't assume your low BP is from the neuropathy.
Have you had baseline breathing tests done? That would be a smart thing to do, too.
The inflammatory diseases often need more than one specialist. Specialty doctors are essential. They know far more than other doctors do about a disease. While Dr. Pestronk is a good neuro, that does not mean he has the right to evaluate other diseases. Nor should anyone assume that one symptom can be chalked up to one disease, without a proper evaluation of that symptom.
I don't mean to lecture or be upset, but I have seen one too many times how assumptions can cause patients to suffer needlessly. And how it ends up with doctors completely missing what is truly going on. You deserve better care than this!
Annie
|
Thank you, Annie. You know you're right. I hadn't really thought much about this because I trust the doc's at WU to over see everything, but honestly maybe they are just chalking it all up to one condition. Thank you for your insight. I will definitely try to get my pcp to refer me to a rheum.
Baseline breathing: Yes, back when I had my first appnt March 2015. They said it was average for a woman my age. This kind of surprised me because I am a runner and up until that point had been running half marathons very regularly.