It has been eons since I have posted here. Soccertese, it was your comments regarding DBS that drew me back. I hope you have gotten your insurance worked out by now.

I had DBS last November, and although it's not the answer to all problems, I'm glad I did it. My worst problem was dyskinesia and dystonia. Both stopped after my first setting. I had to switch from carbidopa/levodopa to Rytary, but everything is going great. I dont have the debilitating off/on phenomena I used to have. Right now I am having trouble with some freezing, but I am hoping this gets better soon.

Yes - do it if you can afford. New approaches are being made daily. I had mine at Vanderbilt - and they celebrated their 25th year of doing Medtronic surgery this paast fall.

Best to you Soccertese!

Peggy