I was told about this drug yesterday by a friend who has MG. Their friend is doing well on it (which was great news).

For those of you who are refractory (such as Erinhermes), this might be something to try for. There is a trial going on right now.

FDA Grants Orphan Drug Designation to Soliris(R) (eculizumab) for the Treatment of Patients with Myasthenia Gravis (MG) | Alexion Pharmaceuticals, Inc

It's very expensive!

It is very promising. They might be getting closer to finding a more exacting treatment for MG. Now that's exciting.

Annie

Phase II

A randomized, double-blind, placebo-controlled phase II study of eculizumab in patients with refractory generalized myasthenia gravis. - PubMed - NCBI

Phase III

Alexion Announces Topline Results from Phase 3 REGAIN Study of Eculizumab (Soliris(R)) in Patients with Refractory Generalized Myasthenia Gravis (gMG) | Business Wire

I love how they talk about MG being "debilitating" when they are doing clinical trials, but neurologists talk about it being "easy to live with" when we go to them for help!

http://alexion.com/research-developm...search/soliris