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Old 07-10-2016, 08:49 PM
ErinBear ErinBear is offline
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Join Date: Jul 2014
Location: California
Posts: 162
8 yr Member
ErinBear ErinBear is offline
Member
 
Join Date: Jul 2014
Location: California
Posts: 162
8 yr Member
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Thank you for posting this, Annie. The Soliris treatment sounds very hopeful and encouraging, although one worries about how patients will be able to pay for it. I'm on IVIG treatments every three weeks right now. It's helping, but I'm not sure I'll be able to continue due to the cost. It's really a worry with some of these treatments. They are so expensive. I know in the case of IVIG, it is very expensive to produce. But it is still a very awkward situation for patients, and I wonder how other patients manage it.

Best wishes to everyone out there - please take good care of yourselves, and I keep wishing you all the best.

Take care,
Erin
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"Thanks for this!" says:
AnnieB3 (07-10-2016)