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Old 07-15-2016, 01:06 PM
DavidHC DavidHC is offline
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Join Date: Nov 2015
Posts: 732
8 yr Member
DavidHC DavidHC is offline
Member
 
Join Date: Nov 2015
Posts: 732
8 yr Member
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Just some thoughts and questions.

I have SFN and fasciculations all over. The most 'fun' place is my tongue. I like to show my wife when it happens and it freaks her out.

I wonder if the fasciculations are part of SFN or it necessarily means motor involvement, because I've had 3 negative nerve conduction studies. I think if it's not part of the SFN, then it's part of the underlying disease process, which also causes my joint, muscle and bone pain. They suspect autoimmunity in my case.

During the six months that I was most consistently on my strict ketogenic paleo diet, the fasculations pretty much disappeared. I've now started back on the strict diet long term and I can say that before I did so, the moment I'd eat too much carbs or anything else not on the diet, say dairy or grains, the fasciculations would increase and appear in never before seen areas, like my tongue, which started only a few months back after eating chips.

Let's see what happens when I'm back on the diet strictly for a while.
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