Quote:
Originally Posted by hopeforthecure2016
So dumb me looked at fasciculations on DR GOOGLE and ALS popped up and what are it's symptoms...fasciculations and weakness. I would like to think that my sarcoidosis with SFN at 34 years old is causing my symptoms and not ALS, especially since I have tingling and POTS. Just wanted to see if any of you had similar symptoms and what helps them. I am on Gabapentin 300mg once a day and Topamax 100mg twice a day.
Thanks!!!
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For what it's worth, I've worked on ALS clinical trials at work. Just like cancer has an ECOG scale, ALS has something similar - a scale that tracks how the disease is progressing and how it impacts the patient's daily life. Even patients that have significant disease process don't tend to have a lot of sensory symptoms. Your list of symptoms do not sound like the typical ALS patient.
