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Old 07-16-2016, 05:23 PM
Mark in Idaho Mark in Idaho is offline
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Join Date: Feb 2009
Location: Somewhere near here
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15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
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skittledaddy,

Welcome to NeuroTalk. I'm sorry to hear about what your son is going through. I've been in his shoes, just not as severe. Your experience with doctors and teachers is not uncommon.

You give generalizations of his condition. It will help if you can get more specific.


[He now has trouble concentrating and thinking, along with comprehending things]

He needs to be evaluated. A NeuroPsychological Assessment (NPA)would be a good start. The school should have a educational psychologist who can get this started. He needs an Individualized Education Plan. Here is an overview of IEPs. What Is an IEP? | Individualized Education Program.


[and his vision tends to focus in and out ]

He needs to be assessed by a behavioral optometrist. Again, the school may be able to get this started. Or, check out NORA.cc


[along with not being able to process things that people say]

An NPA should help understand this. He may have an auditory processing disorder.

[He's always complaining that he has extreme brain fog, and that his mind feels like an empty void.]

This is not uncommon and can be tied to how his brain is processing information. The NPA should help understand this.

[We've talked to several doctors, and one of them has said that post concussion syndrome usually lasts for up to 3 months, 2 of them has said it's likely that he's just faking and over-exaggerating everything. But he isn't lying. I know him, and when he lies. His grades have dropped from A's to C's and D's, and even F's because he's constantly having trouble in school and is very afraid to ask for help because one of his teachers in 6th grade yelled at him and hit his desk several times because he couldn't understand what he was trying to say.]

This is a serious issue. He needs to be removed from any classes where the teacher behaves like this.

[ During 6th grade, (i sadly didn't take him seriously. but now i see that something is very wrong.) he would constantly complain and stay up trying to do his homework, and when I bugged him to go to sleep he would start crying and screaming that he couldn't do it. Occasionally he would even walk to the other side of his school and hide in the little kid's bathroom and cry, ignoring when the office called him to come to the office on the intercom.]

Good that you are finally starting to understand. Now the hard work starts.

[ This year, during 7th grade for him, he's attempted suicide 7 times so far.]

I know the anguish in his mind. It is real. He needs help. Anti-depressants can be dangerous at his age so be very careful about what drug interventions are undertaken. Be very watchful if he is put on meds.

[He seems to be doing better but he's still having those moments where he starts crying because he says no one'll help him and he's suffering. I was actually thinking about possibly seeing a new doctor, and then pushing them to refer us to do a QEEG for his head.]

A diagnostic qEEG can be very good in the right hands and using a good mTBI comparative database. It will not improve treatment but it can confirm injury intensity. A few qEEG based therapists can use it in therapeutic efforts.

[ Now let me mention, those doctors literally have done NOTHING. and they say he looks fine. They don't try anything. Whatsoever. Honestly they don't do jack **** and I'm tired of asking them for answers because they clearly don't know **** about what's going on with him,, so I have done research myself and I don't care if I have to create an essay stating why I believe that he needs this or that, I will do it if I believe and feel that it may help. Because I clearly have no choice and he needs help. ]

Many of us have had the same experience with doctors. Very few truly understand concussions like your son's.

[Desperately. So guys, please help me with this. What do you believe I should do? ]

There are a few things you can do that are simple and safe. Read the Vitamins sticky at the top. The first post and the update linked to (page 46 I think). The B vitamins are most important.

Lower stimulation levels at home. Keep him away from intense sugars, MSG, artificial sweeteners, caffeine, and a few other things that I don't remember.

It may be worthwhile to have his upper neck evaluated. Many concussion symptoms are related to upper neck injuries. These injuries can be very subtle with minimal direct symptoms. But, inflammation in the upper neck can reduce vertebral blood flow. It can also affect the cranial nerves.

A source for doctors and other professionals who usually can help would be a Neuro Rehab facility. These are the places where people go after recovering from comas and other severe neurological injuries.

You could help us help you by giving us your location. We may be able to direct you to specialists.

In your responses, it helps to limit paragraph length to 5 or 6 lines with a double space after. Many of us struggle to read or follow line to line when the paragraph is longer.

You found a good place. We understand.

My best to you and your son.
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Mark in Idaho

"Be still and know that I am God" Psalm 46:10

Last edited by Mark in Idaho; 07-16-2016 at 05:45 PM.
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