HI MAT...

I can say that yes this is a confounding disease...I too see no patterns as to why I get a blast of pain. I try and look to the past and think of what I did that caused the flare and I am at a loss each time. I even look for patterns when I am feeling good and still find no real answers.

I am going on a year of this brutal experience and mine seems to be a more constant as of late...it used to come and go abit...but now its constant pain and what varies is the degree.

I've tried elimination diets...vitamins and supps...excercise...massage...and nothing really helps or hurts...it just is.

Personally I think my PN is mediated through dysfunction of the AI system... but no way to prove it and if you can't prove what is happening then the docs will provide no real remedies or disease modifying treatments.
So we wait until science catches up to us.

I have a skin biopsy tomorrow while you have a lip biopsy...hopefully we and the docs get more insight as to what the heck has gone wrong.

Feel better...cheers.

Sven