Thank you Mari


MS is the #1 reason for my fatigue, but meds and other factors like heat can make it worse. Some days are better than others, but the fatigue is always there. It's a matter of whether or not I can function despite it or not.
I usually wake up between 6-7am, but there are days I have to go back to bed a few hours later regardless of meds, and I almost always have to have a nap at some point during the day. My naps were running longer before the seroquel increase.
The extra 50mg that I just added to my am meds is sedating me, and I have to go back to bed shortly after taking it… no choice. I'm still waiting for the first day when I can just push through it and stay awake.
My husband got absolutely ****faced Wednesday night. He was obnoxious and annoying. I've been so irritable/agitated, and his behavior is driving me up a wall, so I explained a little bit about what was going on with me on Thursday, but that didn't stop him from getting trashed and testing my patience again. He has absolutely no consideration for me, or anything I might be going through. He drank heavily on Friday, but paced himself so he wasn't such a handful, but was back to pounding the beers and being obnoxious again last night. It was a blessing when he passed out at 7:30.
We got "HIS money" back yesterday. It's "HIS money" because he works for it, and I don't work. Of course I
can't work, but that doesn't matter. I feel badly because I would like to contribute, but can't because I'm handicapped. I have told him that comments like that make me feel like a beggar and a piece of ****, but he doesn't care. I get a social security check, but it's a small amount of money that I was mainly using for medical expenses and cab fare, but have been using more of it for household expenses now that I'm seeing doctors less and am driving again. He says, "THAT is YOUR money." That's the last thing he said to me before he went to the bathroom, and then disappeared into the bedroom to pass out last night.
I don't want to start a fight because I never know how far he's going to take it, and I can't deal with his temper right now, but he's getting on my last ****ing nerve. He's a total ***hole.