Hi Erin,
Thanks for telling your story. I don't think I've run into anyone who tests exactly like me. Any other negative antibody folks always had some EMG or SFEMG findings.

My symptoms are worse in heat, cold and when my thyroid dose needs increasing or if my calcium or potassium are low. My last ER close call was with a "just below normal" potassium but that was 5 years ago. I'm working really hard to keep all things balanced and at least my GP has realized that he has to walk a fine line with me. He ignored my slightly high TSH in June, until I booked an appointment, begging him to treat me. I was out of breath walking ten steps from waiting room to his office! I'm feeling better on a higher dose and the pulmonologist (who also thinks it might be MG) gave me a new puffer that has helped my worsening asthma a lot.

I think I'll have to draft the document for the family doc, with the various interventions and evidence I have. The doc I'm thinking of seeing is well known in the mitochondrial disease world and also treats MG. My reading shows the next way to confirm seronegative MG is to do a muscle biopsy to rule out other nasty muscular diseases. If it is clear, then it is MG. A muscle biopsy has been mentioned by two specialists but they chickened out when they noted my low white blood count. One even said "You should have a muscle biopsy closer to home, in case you get an infection"! Yet my small city can't do them. The doc I want to go to is at a teaching hospital and has a reputation for doggedly pursuing difficult diagnoses. I tell friends I need a Dr. House, but nicer, as my episode is years long, not just 60 minutes!
Flutebell