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Old 07-27-2016, 10:16 AM
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
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MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
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Quote:
Originally Posted by en bloc View Post
MAT,

I posted the different patterns when your ANA first became positive. And yes, Nucleolar is associated with Scleroderma...but also polymyositis.

I do actually know someone from Sjogren's World forum that had both Scleroderma and Sjogren's. He no longer posts there, but he tested positive with lip biopsy and all the scleroderma tests. The most common symptom of scleroderma is the thickening of skin.

You have never mentioned any skin thickening. Is this an issue for you? What about muscle weakness??

Here is a Wiki post on Polymyositis. See if anything rings a bell for you.

Polymyositis - Wikipedia, the free encyclopedia
Thanks for this Enbloc. I find it very hard to say about whether or not my skin is thickening.

I've had a lifetime of eczema which has been replaced by the SFN now so my sensations are skewed and some of my skin seems thin, rather than hard or thick, from prolonged topical steroid use. My toes do have small hard patches on the joints under my nails and this has baffled me. They feel very dry and as if they have shrunk or lost padding and are affected by Raynaud's in the winter months.

My hands are tight and I can't grip or clench well - the knuckles seem hard and raised in places and I can't shift the duvet or pillows in the early hours for sharp pain and stiffness. I thought this was RA but I have no heat or soft swelling - just very puffy and tight. My finger nails and toenails have strange pink halos that are telangisasias I've worked out - also on my finger tips and palms and a few dotted around my face. I have tendonitis and my limbs feel very weak at night - I have to rest them on soft pillows. Not sure any of this tarries too much as could just be arthritis and wear and tear ageing. My mouth is the worst affected part with burning lips and gums and this often intolerable tightness between my top gum and my nose rather than lips

Pins and needles raging in my finger tips give small electric shock sensations when I type. But I think it's my feet and legs that feel as if they are turning to stone all the time.

Will look at polymyositis link - haven't thought of this at all. I don't think it's my muscles that are wasting though - it feels like it's my tendons and my bones and my nerves? Can't really explain but hoping you get the gist. Mat x
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Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases

Last edited by MAT52; 07-27-2016 at 01:51 PM.
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