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Old 07-27-2016, 04:01 PM
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CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
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Quote:
Originally Posted by abigailsophiex View Post
Thank you!

Yeah I was diagnosed late (not as late as you though) at 7 months from onset and then again at 1 year and 2 months. Ive waited 18 months to start treatment though which isn't fun when you're only 20 and paralysed as a result

I have heard that about the blocks too, they say its a safe procedure but there are so many risks associated with it! xx
They always say it's safe because for them it's just a routine procedure; but you have to live with the consequences. I got the standard Belgian treatment which is calcitonin & bisphosphonates (for late stage). Well, it was all too late anyway.
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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