Quote:
Originally Posted by LilWeezey
Hello, as of Tues the 3rd I was unofficially diagonsed by my neuro-opthomologist with MG. Ive been prescribed Mestinon and Prednisone to see if it elevates my symptoms.
The only symptom I have is diplopia [double vision]
I was recently discharged from Navy bootcamp for the double vision and all the navy doctors thought it was MG.
I got CTs done, MRIs done, Tessilon Test, and EMGs and everything except the EMGs came out negative [there was apparent weakness in both my arms that were tested], even the blood work. But my cilivan neuro-opthomologist said that 50% it won't show up on the blood work [they didnt tell me that at the VA]
Does anyone have diplopia and take these 2 medicines. If yes how long til its effective? I see him this coming Tuesday again. The medications have helped so might as lightening my double vision and removing the "tugging" feeling from the effected eye. And very slightly helping out my leg that has RLS/Shin Splints.
Will I develop any other symptoms?
If not MG what could possibly be going on?
Thanks in advance!
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Hi, I was wondering how you are doing? Did you get a definitive OMG diagnosis? If so, are you still in the OMG stage?
I was dx'd OMG (neuro-opthalmologist) for pstosis and double vision in June 2015, started Mestinon that September, and got the generalized DX (neurologist) this May. It was the heat and an extremely stressful 2016 that tipped me over to generalized. I'm only taking Mestinon and hope to continue this protocol as long as possible although some days (like today) I feel like utter weak crap (fatigue, limb weakness, pain). I'm also hoping to get a thymectomy done in the next few months.