Hi Chellie,

Welcome to NeuroTalk!

I'm sorry you're having difficulty with finding a knowledgeable and helpful doctor where you are living.

There is a

Tarlov Cyst Forum

If you repost there, perhaps someone with the same condition and living in the same area can offer some advice.

If you read some of the older posts you may also come across information that could be of help to you. There is a search function you could try.

http://www.neurotalk.org/search.php

All the best to you. I hope you find some helpful information.