What is your definition of an "acceptable range" for O2? It might not be correct.
This is one of my favorite book quotes.
“Arterial blood gas measurements are a relatively insensitive measure of
impending respiratory decompensation in MG since the initial changes are
consistent with hyperventilation and are usually attributed to anxiety. By the
time CO2 retention occurs, the respiratory muscles have already begun to
decompensate.”
Decompensate means that muscles are FAILING.
Both oxygen saturation and ABGs can be deceptive. That's why a clinical exam is so essential. Any hospital doctor SHOULD be schooled in how to do a neuro exam. They test the muscles and rate them from 0 to 5 (zero the worst, 5 the best). They list is as, for example, 3/5.
I should add that to the list.
If you are that bad, you need help. You need to be in an ICU.
Most doctors offices have people on call. They can easily call your neuro's office and get someone on call to put in orders for you. Heck, you could call them! This is so silly.
Maybe instead of ER it should be the "LR," or Lazy Room. I often call it the "E-Aren't" Room.
Here are some PDFs for you.
I'm very concerned about you. You need more care. There is no way to predict how bad MG will become or how quickly.
Don't take "no" for an answer. You could always ask them if they want you to die.
Annie