Hey sweetie

I am sorry that you are now in so much pain from the wedding - but YOU DID IT!!! That is what matters! and I am really pleased you managed it! (Also, it must have rocked having people there that understood what RSD is). There are always going to be idiots that don't understand what RSD is and who aren't interested in what it is or how it affects you - but get rid of those people from your life, or reduce their impact on your life because they are just not helpful! Naps are a must - I mean - how many people (apart from us lot) survive for months or years at a time with less than 2 hours sleep a night if you are lucky? if other people had to suddenly have our lives, even for a day, then they would soon know how physically and emotionally draining it is to live with chronic pain and that's before you have reached the pain and disability bit!

I don't tend to nap but I do get up for a couple of hours then lie down for a bit, then sit up for a bit then lie down abit etc etc etc...

Right - take care my dear and I hope the flare calms down abit soon!!!

Love you loads!! and sending pain free hugs....

Frogga xxxxxxxxxx