Well, I hope that neurologist likes lawyers because he's setting himself up for a huge lawsuit if you tank on his watch.

I'm not kidding. He has already put himself in jeopardy.

The more important issue is that you are doing poorly and don't have adequate care. If your neurologist and pulmonologist (they work together in a hospital setting and you need both to have orders) put in orders for care when you have an exacerbation or crisis, other doctors HAVE TO abide by those orders. Otherwise, the hospital is also in legal jeopardy.

Good grief! This is ridiculous.

No one can "fake" the tests results (i.e., ABG) of a crisis. No other disease, except for LEMS and a CMS, has fatigable muscle weakness.

I can't remember. Have they tested your IgG? There are other antibodies and mutations they are finding for MG. Seronegative means nothing. MG is a clinical diagnosis that is backed up with tests.

What else can we do to help?

Your life is potentially on the line here and you aren't doing well.

This is what you can do. Sleep. Stay hydrated. Eat good food. Sleep. Sleep a lot. Stay cool. Don't do ANYTHING. Stay off of the computer. And dial 911 if you get worse!!!


Annie