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Old 07-31-2016, 09:45 PM
onlyhuman onlyhuman is offline
Junior Member
 
Join Date: Jul 2016
Posts: 19
8 yr Member
onlyhuman onlyhuman is offline
Junior Member
 
Join Date: Jul 2016
Posts: 19
8 yr Member
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Quote:
Originally Posted by glenntaj View Post
My initial report not only showed figures below the fifth percentile, but also noted "excessive branching and swelling, consistent with a small fiber neuropathy". I did not have any autonomic symptoms--just very severe small fiber nerve pain body-wide (that came on acutely--in hours). My last biopsy--the good thing about them is they can be done repeatedly for comparison--showed me up to about 16th and 18th percentile at leg and thigh, respectively--I have gotten re-enervation and this corresponds to the reduction of symptoms. (I'm due for another one soon.) However, the problem is we have no idea how this compared to my nerve fiber density before my acute onset on April 11 2003.
Many thanks for the data and links - but most especially for your report of improvement in ENFD! This gives me hope! Thank you!

Can I ask how you are doing now? Have you had any follow on biopsies and would you care to share the results?
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