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Old 08-01-2016, 02:23 PM
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CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
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CRPSbe's Avatar
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
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Quote:
Originally Posted by Littlepaw View Post
Hi Abigailsophie,

Preventing further contracture and resulting problems is a worthy cause. So many additional discomforts can come from being out of alignment. I really like the idea of the casts/splints being soft and removable. Depending on how often you go to PT it may be helpful to take them off more often to do passive range of motion on those joints if you can tolerate it. Tendons and ligaments tighten up so quickly and routine movement of them can be very helpful. I had both casts and splints as part of my journey (not for the same reasons as you) and I remember being surprised by the atrophy and stiffness that resulted. Being able to do passive movement could make a big difference and minimize losses in range.

I remember too how awful the bandaging felt against my skin when I developed CRPS after my last operation. Find the softest material you can that causes the least aggravation and use it as a liner. Topical cream may help. I use one with ketamine and gabapentin in it that I find helpful. Avoid opiates when and if possible. They certainly have their place but can contribute to hypersensitivity.

Good luck on this. I hope you find relief with it. I am two years out and still wear a brace at night to keep my foot from contracting. I can definitely tell when I don't use it.

I feel that medication is a very personal thing and something between you personally and your doctor. No two people are the same or react the same to the same things.

That cream? What is it called? I've never heard of ketamine/gabapentin cream, ever.
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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