Quote:
Originally Posted by ElaineD
Dear NeuroTalk PN Friends,
I've been taking Gabapentin since last summer, about a year. It stopped almost all of the pain and discomfort of my SFN.
However, I've had some strange neurological? problems, which started this Spring. And I've had a CT Scan of my head, and an EEG, both of which were normal.
After some research I decided that perhaps the Gabapentin was the cause of the neurological problems (limb jerking, core body jerking leading to falls).
So I am on a program of withdrawal. Withdrawing from Gabapentin is compared in difficult to heroin withdrawal. I know nothing about withdrawal, but this is fairly difficult as I end my first week. The pain and discomfort of my SFN is creeping back, and I have other symptoms, like insomnia.
So, I wonder if my neurological problems will resolve and then I won't be able to return to Gabapentin, once I've concluded my taper.
There are no other drugs as successful, according to my research.
Right now I'm also dealing with a new found cyst on my lumbar spine, which is causing pain if I stand or walk. So I have a bunch of stuff going on.
I'll keep you posted on how my Gabapentin experiment is progressing.
Hugs, ElaineD
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Sorry for your troubles. I hope you can find a different med to help. Are they going to try to transition you to something else? Many people have luck with nortriptylene. Have you tried it?